Tuesday, December 11, 2012

I described the old infusion center on 17th street in some detail, so I should mention the really nice luxurious one on 38th street.

Instead of a crowded room full of baby blue recliners, every patient gets their own little room with an extra chair, which I hope my husband will use on Thursday. Really nice.
I was just using this blog to remember certain dates.

I started with Beth Israel neurology in 9/2010. Switched to NYU MS Center at the beginning of 2011. I was awarded SSDI in November of 2011.

My first Tysabri infusion was June 13, 2011.

I began taking Ampyra once a day on 11/19/12, & twice on Thanksgiving, 11/22.

The first thing I noticed about it was how it evens out my energy, so that it doesn't fluctuate so wildly. I can stay awake during the day, and can sleep at night. There are other good effects, but they come & go. Especially since at the end of November we both got the flu, so that messed everything up. So I am very hopeful about the Ampyra.